How a Man with Parkinson’s Uses His iPad to be Productive


Digital memories facilitate meaningful engagement, share legacy
 

For the past few months I have been visiting with Niles, a colorful 77 year-young man. A former Boeing system architect, community theater actor, and an atheist married to a priest - his third wife. He is witty, engaging, grateful and he has Parkinson’s disease.

Niles is an inspiration to others living with Parkinson's. He uses his iPhone and iPad to reminisce and save cherished memories.

Niles is an inspiration to others living with Parkinson's. He uses his iPhone and iPad to reminisce and save cherished memories.

Niles thinks and feels very clearly for the most part, but with Parkinson's it is often hard to tell. Medical professionals call it hypomimea, or the diminished animation and movement of the facial muscles. Niles’ voice inflection is reduced and his memory is not what it used to be.

Niles is sharp and he is never far from either his iPad or his iPhone.  He watches YouTube, Facebook’s, and looks at pictures of his family on a daily and hourly basis, just as you or I do. He is beginning to need assistance to manipulate his mobile devices. I see his tremor impact his experience, and we are working with accessibility features that can help, but he moves forward unfazed.

I have been stopping by weekly. He’s profoundly happy when we sing together, and it’s no surprise that it also helps his speaking volume  - a lot. Despite his Parkinson’s, the love he feels is visible when we look at pictures of his family. He delights in watching clips of plays (many of which he once starred in) on YouTube and reminiscing together.


Not only is Niles able to reminisce, but he’s also productive. We created a story by recording his voice over images. It was for his wife Karen; it told the story of their meeting and falling in love.
During my first visit, Karen joined us and provided a box of pictures and some context.  We used the camera on the iPad to save the photos digitally. Next, Niles and I created a Digital Memory Box - a simple document with links to his favorite photo albums, YouTube videos, music playlists and stories narrated in his own voice.

 
For visitors, the digital memory box is a great topic of conversation - instant access to cherished memories. There is no doubt how valuable these resources are today and how important they will be in the future.


Truthfully, I think employers can do more , but so can we as friends and family. It just takes awareness and some tools. If you want to help a caregiver you know, think about creating a digital memory.  It will help both the caregiver and their loved one. As Karen said to me “What a gift you have given our family! I can’t thank you enough.”  In my mind, our digital memory box is truly the gift that keeps on giving.
 


Generation Connect designs resources to help empower people through technology, such as those living with Parkinson's. Join our mailing list to learn about how we help caregivers use tablets to facilitate meaningful engagement and enhance a person's legacy.